TBG had an appointment with an NP on Monday since his PCP was out of the office for the week. He's still pretty short of breath and fatigued. They did another round of x-rays and blood work. Thursday after calling them twice, a nurse finally called back with the results. She told us he had an enlarged heart and heart failure. Yep, a phone call from a nurse who couldn't have answered any questions we would have had if we weren't in shock. The only plan was to start diuretics and get an ECHO on December 12th.
This did not set well with me. Things just weren't adding up and if indeed he was in heart failure, I wanted tests much sooner. So Friday I spoke with one of the doctors that I work with whose husband is a cardiologist. Long story short, TBG was in an ECHO by 7:30 am and at 1 pm had an EKG and a consultation with the cardiologist. A couple of medications were added that he'll likely be on for the rest of his life and his blood pressure medication was stopped. Today he is being fitted for a Life Vest so they can monitor what is going on with his heart and he is scheduled for a stress test November 28th.
We have no idea what caused this but it most likely was a viral infection.
I am so thankful for the people in my life that made it possible for us to get answers and a plan in place sooner rather than later. It's sad that things are the way they are and we really do have to advocate for ourselves and others.
We're looking forward to celebrating Thanksgiving this week. We are hoping for a restful, food filled, laughter filled holiday.
I hope everyone is well and has a wonderful week.